If you or a loved one has epilepsy you know how challenging — even frightening
— it can be sometimes. It often helps to learn more about your condition,
and to communicate with others who understand the challenges themselves.
Your doctor is always your best source of information, but the following Websites
may help you learn more about your condition and communicate with others who understand
the challenges themselves.
Epilepsy Foundation of America®*
The Epilepsy Foundation is a national voluntary organization that focuses its work
on helping individuals with epilepsy and their families, and sponsoring research
to find a cure. With more than 50 affiliates around the country, it’s possible there
is an Epilepsy Foundation chapter in your area. Check the Web site for national
and local events.
*Registered trademark of Epilepsy Foundation of America.
Epilepsy.com
This site is sponsored by the Epilepsy Therapy Project, a not-for-profit organization
started by parents and now a comprehensive source of information and research.
National Institutes of Health/NINDS
The National Institute of Neurological Disorders and Stroke is a section of the
federal government's National Institutes of Health. Their site provides information
about epilepsy as well as a listing of many other organizations that might prove
valuable in your search for information.
KidsHealth
KidsHealth is a Website containing current information about kids' and teens' health
issues and diseases. All material is reviewed by doctors before being posted. KidsHealth
offers separate sections for children, teenagers and parents.
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Living with Epilepsy 101: The Basics
This section of epilepsy.com provides down-to-earth advice on how to live well with
epilepsy. Covering everything from employment to socializing, this is a good resource
for the entire family.
Epilepsy Foundation: Living with Epilepsy
The Epilepsy Foundation gives patients and families information on a broad range
of topics, including an overview of wellness and lifestyle, and special issues relating
to children and teens, women and seniors.
The University Hospital: Living with Epilepsy
This Website is sponsored by the University of Medicine and Dentistry of New Jersey.
The "Living with Epilepsy" page addresses issues such as driving, participating
in sports, sexuality, pregnancy and aging.
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Coping with Epilepsy
This is a free online forum where people with epilepsy can discuss issues of concern
to them and engage in online discussions with others.
Epilepsy Foundation eCommunities
More than 15 special-interest bulletin boards and live chats are available through
the Epilepsy Foundation. Find those who share your interests, discuss issues and
make new friends through this comprehensive resource.
Epilepsy Meet-Up
Find meetings in your area. Meet others with concerns similar to yours. Discuss
issues with others on the Internet.
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Caring Parents
This Website is exclusively for parents and caregivers of people with epilepsy.
The section entitled "How Does Epilepsy Affect Daily Life" provides good information
for parents and caregivers to better understand how epilepsy will impact their day-to-day
routines.
Parents Helping Parents
The Epilepsy Foundation devotes a section to parents of children with epilepsy,
believing that parents' feelings about dealing with epilepsy are a key influence
on how their children feel about the disease.
Families and Caregivers
Epilepsy.com offers a wealth of information on epilepsy in newborns, kids and teens
to support parents and caregivers. There's even a section for nannies and babysitters.
A "Back to School" section provides useful information to give to teachers and others.
Tuberous Sclerosis Alliance
The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex, while improving the lives of those affected.
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